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Serious eye problem

Moderators: june joseph, sipreal.

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Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago


UPDATE 10:

September the 12th, 2013.

The appointment with my Ophthalmologist on the 6th of September was re-scheduled to the 10th of September. The morning of the appointment I noticed some tiny flashes in my eye, but definitely not what it used to be. When my Ophthalmologist did the eye exam, he did notice improvement again, but there was still some "unrest" in the retina.
Usually before doing the injection he checks the eye pressure to make sure it is not too high because when the eye gets injected that increases the eye pressure considerably for a moment so if the eye pressure is high before the injection, it will increase the risks associated with the injection considerably.
Usually my eye pressure is ok, but this time it was on the high side, so he recommended to check my blood pressure first because an increase in the eye pressure can also be caused by high blood pressure and he also wanted to make sure there was not something else going on with my eye.

It turned out he was right. My blood pressure was sky high 166 / 105.

So with my blood and eye pressure being so high he did not want to take the risk to inject, but I also did not want to postpone the injection , and we decided for me to take some medication to lower both pressures, and hold on for about an hour.

It worked. My blood pressure was still on the high side, but my eye pressure returned to normal, so we went ahead with the procedure.

The injection itself went well, but after the injection my eye acted up a bit. First the sight dimmed for about 10 minutes and after that everything became very bright and all colors bleached. Fortunately a few hours later my left eye sight returned to normal.

It is now 2 days after the injection and I am still in the period that the retina can detach (one of the risks of the injections) but I think that everything will be ok. My eyesight is back to normal and in general pretty good.

My next appointment is on October the 11th



« Last edit by sipreal on Mon Mar 23, 2015 9:19 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 11:

November the 30th, 2013.

I had to cancel my appointment with the Ophthalmologist of the 11th of October 2013 because I got the message that my mother was hospitalized and I had to fly back to Holland immediately.
Unfortunately once there I got the bad news that my mother was terminally ill, so I decided to stay with her until she passed away.
In the mean time I made an appointment with the Ophthalmologist in the hospital in Holland for an Avastin injection on the 5th of November. Little did I know that that would also be the date my mother passed away.

I did the OCT scan and considering that it was 2 months ago since the last injection, the scan did not look too bad, but I still needed the injection to avoid the condition from getting worse. The procedure went well, and again after a few days of the feeling that I had sand in my eye, my sight improved again.

My next appointment will most likely be back in Trinidad again, and I will see if it will hold out for 2 months again, because that means there is improvement.

On another note, when I mentioned to the nurse in the hospital that this would be my 9th injection, she said ... "Oh that is nothing, some people are already on their 50th injection" ... to which I "thanked" her sarcastically for the "encouraging" words. Wow ... I certainly hope I do not have to face that, but if the choice is going blind or the injections, well ... give me the injections any time.

As usual I'll keep you posted of further developments.



« Last edit by sipreal on Mon Mar 23, 2015 9:23 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 12:

January the 10th, 2014.

I am back in Trinidad, and since a few days my vision is getting blurred and deformed again which of course means that I have to go back to my own Ophthalmologist.
I also did an OCT scan and unfortunately it looked very bad, almost the same as the very first scan, so another Avastin injection. My 11th.
This time the Ophthalmoligist injected more Avastin than usual, and amazingly after just about 8 hours, my eyesight started to imporve already.

My next appointment is on the 7th of February.



Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 13:

February the 7th, 2014.

My eye sight is still very good, but to be sure I did an OCT scan which looked very good as well. Just a tiny little bit swelling of the Retina could be seen. However, considering the past medical history of my eye, it is hard to tell if it was still some swelling left from the last time, or if it was the beginning of a new Oedema.
To be sure, and also seeing the fact that I soon have to travel again, my Ophthalmologist and myself decided better to be safe than sorry and I had my 11th Avastin Injection.


My next appointment is supposed to be on the 9th of April, but I have to go to Holland again, so most likely I'll have my checkup there.

Keeping you posted.



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« Last edit by sipreal on Mon Mar 23, 2015 9:24 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago

UPDATE 14:

May the 9th, 2014.

While in Holland I noticed the Oedema started to come back, but I decided to try to hold on with the next Avastin injection until I was back home in Trinidad because I prefer it to be done by my own Ophthalmologist.
Not that the treatment in Holland is not good, but here in Trinidad it is less painful and it is more personal. In Holland it's like "assembly line" work, one after the next patient gets wheeled into the operating room after being prepared and then ... bim ... bam ... injection in your eye by a different Ophthalmologist than the one that is treating you and then you are wheeled out again to recover.
Here in Trinidad the treatment is a bit more personal, they make sure you're comfortable, put you at ease and the actual injection is a lot less stress- and painful than in Holland.

So it was more than 3 months since my last injection and on the 9th of May, 2014 I had my 12th Avastin Injection.
I have to say though that 3 months is definitely way to long in-between injections because it takes much longer for my eyesight to get back to normal.
I also started new eye drops to lower the pressure in my eyes which allows for a better blood circulation in the eye and which helps draining the Oedema fluid. The name of the eye drops is Combigan. They seem to be working well, but I'll know for sure in a few weeks.

My next appointment is scheduled for the 2nd of July.

Keeping you posted.



Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 15:

June the 2nd, 2014.

I can be brief. The Oedema started to come back and I had my 13th injection.

My next appointment is scheduled for the 11th of August.

Keeping you posted.



Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago

UPDATE 16:

August the 8th, 2014.

My appointment of the 11th of August was moved forward to the 8th and even though it was only 5 weeks since the last injection and my eye was still holding up pretty good, we decided to do another injection, because the Ophthalmologist was going on vacation for 3 weeks, and we did not want to take the risk the Oedema started to act up again while he was on vacation.
Of course there is always another Ophthalmologist who is holding on the practice in the mean time, but with something as delicate as an injection in your eye, you prefer the doctor who you are accustomed to.

So I had my 14th injection. The next appointment will be in about 6 weeks time.



Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 17:

October the 10th, 2014.

Through a missed voicemail my next appointment ended up 9 weeks after the last injection instead of 6 weeks and this time the Oedema had come back a bit worse than the previous time.
So as you would have guessed already, I needed another Avastin injection, number 15.
But I now have a good reason to look at it in a positive way, because I found out that Avastin is also used to stop the growth of brain tumors and is also used to fight certain intestinal cancers, so who knows ... maybe by having to go through this ordeal, I might be spared something much worse ...

Concerning the eye pressure; it was rather high this time 21 and 23 (remember the eye pressure has to be below 20). So we stopped the Combigan drops and started another combination of Timoptic XE (1 drop daily) and Alphagan P (3 times 1 drop daily).
Unfortunately we are running out of combinations and if this does not work, I might have to start using other eye drops which have a less nice side effect ... they darken the iris.

The next appointment is the 10th of November 2014, about 4 weeks from now, to make sure the new eye drops combination keeps my eye pressure below 20.

Until then.



« Last edit by sipreal on Fri Nov 14, 2014 11:19 am. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 18:

November the 10th, 2014.

Went for a check-up on my eye pressure today, which was very good. 16 and 18, so we will keep using the combination of drop as mentioned above.
However, 2 days ago I got the first indication that the Oedema started to come back, which usually is indicated by the before mentioned flickering which looks like you see light through a hanging water drop which vibrates in the wind. So we did Avastin injection #16.
On further examination of the inner eye, the Ophthalmologist did indeed see the onset of the Oedema, so we decided to do injection number 16, to see if we could suppress it from coming back.
I also had my blood pressure checked, which was 110 / 188, which is way to high. As a result I started to take my Blood pressure tablets again, which I had stopped to try a Homeopathic way to reduce my high blood pressure which works very well for my wife, but unfortunately as it turns out not for me.



The next appointment will again be in 4 weeks time on the 12th of December 2014.



« Last edit by sipreal on Tue Dec 16, 2014 10:47 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 19:

December the 12th, 2014.

Went for a check-up again. Eye pressure was very good. 12 and 16, so we will keep using the combination of eye drops as mentioned above.
I started to take my Blood pressure tablets again and my blood pressure is back under control.
However, yesterday I saw the first signs that the Oedema started to come back again, so we decided to do the 17th Avastin injection.
Besides that, the last few months the white of my eyes became very blood shot, initially it was pinkish, but it got progressively worse. On having a closer look, the Ophthalmologist noticed the the eye lining was swollen and a bit infected which was affecting the globe as well, most likely caused by some kind of bacteria. As treatment he prescribed a Steroid antiseptic (Cyprofloxacin 0.3% Dexamethasone 0.1%) which works very well. Already after the first application (1 drop twice daily in each eye) it started to clear up and the redness is gone.

The Steroid eye drops will also function as a test to see if the eye pressure changes, as this medication can increase the eye pressure which can cause Glaucoma or even Cataracts. If the eye pressure if not affected too much, we might try a Steroid injection instead of Avastin, because the remains of the Oedema seems to be very tiny but stubborn and once the Avastin has reached the end of it's potency after 4 weeks, it stops holding back the return of a larger Oedema which is caused by the tiny Oedema.
Studies show that the steroid injections have a better healing effect on the tiny Oedema before it gets a chance to develop in a large one.
However, the Steroid injection does not only come with the usual risks of infection inside the eye, it can also cause the development of Glaucoma and/or Cataracts (1 out of 3 chance), so it will not an easy decision.
But let's first see how my eye reacts to the steroid drops. If my eye pressure increases, the steroid injection is definitely out of the question.

The next appointment will be in 3 weeks on the 29th of December 2014. Until then



« Last edit by sipreal on Tue Dec 16, 2014 10:57 pm. »

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