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Serious eye problem

Moderators: june joseph, sipreal.

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Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 20:

The 29th of December, 2014.

Went for a checkup to see it the internal eye pressure has been affected by the steroid drops. The pressure was indeed a bit elevated 26 in the left eye and 23 in the right.
We decided to stop the drops in the right eye as the redness had totally cleared up and continue the drops in the left eye to see it it might have a positive effect on the Oedema and to find out if we might try the steroid injection.

I have to come back on the 16th of January 2015.



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« Last edit by sipreal on Mon Mar 23, 2015 9:28 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 21:

The 16th of January, 2015.

Went for a check-up again to measure the internal eye pressure and this time the pressure was elevated quite a bit, 35 in the left eye and 26 in the right. This is way to high considering that the pressure has to be below 20.
We decided to stop the steroid drops completely because it clearly shows that unfortunately I am not a suitable candidate for the steroid injections. Most likely I will end up with Glaucoma and possibly Cataracts.
I was prescribed Diamox tablets twice a day for a week to bring back down the eye pressure before I end up with more complications requiring surgery.

I have to come back on the 3rd of February, 2015 to make sure the eye pressure is back to normal.



Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 22:

The 3rd of February, 2015.

Went for eye pressure check-up again and fortunately it was back to normal. 16 in both eyes.
Also the Oedema did not seem to have gotten larger, so we set an appointment for the 6th of March.
Fingers crossed that the Oedema is stabilized and maybe will disappear all in all.



« Last edit by sipreal on Tue Feb 10, 2015 6:05 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 23:

The 6th of February, 2015.

The Oedema is acting up again. Since a few days my eyesight starts to get blurry again which indicates there is once again bleeding in the eye.
This is very disappointing and not in the least discouraging as I thought that maybe we had stabelized the Oedema.
I am going to set up an appointment to get a next Avastin injection as soon as possible before it goes out of hand again.



« Last edit by sipreal on Mon Mar 23, 2015 9:28 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 24:

February the 13th, 2015.

I had my 18th Avastin injection. As usual my eye reacts well to it and my eyesight is improving again.
Considering the fact that the steroid drops seem to have had a positive effect on the oedema, we decided to try another less powerful steroid drop which is less likely to increase the ocular pressure as drastically as the previous one which was Quidex (Cyprofloxacin0.3% Dexamethasone 0.1%).
The name of this one is Allergan FML (Fluormetholone 0.1%).
We will also continue with the Pressure lowering drops for both eyes - Alphagan P. (Brimonidine tartrate0.1%) and Timoptic XE 0.50%.

The next appointment will be in 4 weeks on the 13th of March.



Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago


UPDATE 25:

March the 23th, 2015.

I cancelled the appointment set for the 13th (10 days ago), because so far my eyesight seems to be stable and I do not unnecessary want to stress my eyes with an eye exam. The only thing I had to do was to have my eye pressure tested (Glaucoma Test) at our local Optometrist store because of the steroid drops which might increase the interocular pressure. The average pressure was 19.5 left and 19 right eye, which is good.
We decided that as long as the interocular pressure stays within an acceptable range and the sight in my left eye does not get blurred again, I will keep going with the present eye drops regime as described in update 24.
So for now the little experiment seems to have a positive result. At least it definitely seems to delay the Oedema from recurring.
I also noticed something else which I feel might cause the Oedema to recur, but I am not sure if that actually is possible so I will not (yet) mention it in this Blog.

I did not set up a next appointment, but I agreed with my Ophthalmologist that as soon as I notice a decline of my left eyesight I will immediately set up an appointment. I will also keep checking the pressure to make sure it does not get out of hand which might permanently damage the Optic Nerve and Retina.
I'll keep you posted.
However, if someone wants to ask me a question about my experience with Macular Oedema or Retinal Vein Occlusion, please feel free to e-mail me at sipreal@gmail.com



« Last edit by sipreal on Mon Mar 23, 2015 9:02 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 26:

April the 22nd, 2015.

The Oedema came back and my eyesight got blurred very fast, so I got an appointment on a very short notice. According to the Ophthalmologist the Oedema did not get worse than the last visit, which was now nearly 9 weeks ago, but to continue to try to get rid of that tiny but stubborn swelling, we did a next Avastin injection. He did notice some slight damage of the cornea which might have been caused by the steroid drops.
We decided to stop the steroid drops completely and he prescribed Terramycin to help heal the cornea which I had to administer for 3 days.
We are also going to try another ophthalmic drops, ACULAR LS (ketorolac tromethamine), which is similar to Nevanac, but with less side effects. However, there are still side effects, and just like with any medication it is important to read the enclosed leaflet.

The next appointment is scheduled for the 8th of June, 2015.
If you have a question about my experience with Macular Oedema or Retinal Vein Occlusion, please feel free to e-mail me at sipreal@gmail.com



« Last edit by sipreal on Mon Aug 17, 2015 9:49 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 27:

June the 9th, 2015.

About 2 weeks after the last visit, after which I started to use some additional new eye drops, my eyes continued to be irritated and very red. My eyes were clearly indicating that they had enough with all the drops and probing. Therefore I decided to stop with all eye drops. Already the next day my eyes cleared up and the second day with the help of some Visine (or Clear Eyes) my eyes were no longer red and irritated.
Of course, I was a bit risky in connection with the ocular pressure which did increase a bit as I have to take the drops to lower the eye pressure.
So I have to start to use Timoptic XE 0.50% again once a day to lower the pressure.
The internal eye check-up showed that the Oedema had not returned, so no injection this time. YAY!!
However, it was not all good news. The Ophthalmologist now also diagnosed the beginning of cataracts. Which is what I feared might happen with all those drops and injections. He could not say how long I have before I have to get an operation as some cataracts take long to fully develop and others develop very fast.

The next appointment is scheduled for the 1st of July, 2015.
If you have a question about my experience with Macular Oedema or Retinal Vein Occlusion, please feel free to e-mail me at sipreal@gmail.com



« Last edit by sipreal on Mon Aug 17, 2015 9:49 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 28:

July the 3th, 2015.

2 days after my last visit.
Only 3 weeks since my last appointment but I did not mind, because my eyesight became very blurred very fast, and now with the new development of cataracts, I am not sure if it's caused by the Oedema or cataracts.
As it turned out, the Oedema was back, so that meant another Avastin eye injection.
The Ophthalmologist now also dilated my right eye, and also that one had the beginning of cataracts. So 2 possible operations in the future.
Also the ocular eye pressure was too high in my left eye (26) so the Timoptic XE 0.50% drops alone was not enough to keep the eye pressure below 20. So now I am back on the Combigan twice for the day plus the Visine (or Clear Eyes) once or twice for the day as needed.
The injection went very well this time with little or no discomfort during or after the procedure. I guess I'm getting used to it. This was my 20th eye injection.

The next appointment is scheduled for the 3rd of August, 2015.
If you have a question about my experience with Macular Oedema or Retinal Vein Occlusion, please feel free to e-mail me at sipreal@gmail.com



« Last edit by sipreal on Mon Aug 17, 2015 9:50 pm. »
Moderator
Registered: Sep 2011
Posts: 37
Location: Trinidad and Tobago
UPDATE 29:

August the 17th, 2015.

I cancelled my appointment for the 3rd of August, because I do not experience any problems and I only would have to go to get the intra-ocular pressure taken to see if the Combigan is effective to keep the pressure down. Together with my Ophthalmologist we decided I can get the test, also called a Glaucoma test, done by Value Optical, the local optometry services store.
The results were good. The right eye 17 and left 16, which is what it should be.

As I am now also diagnosed with the beginning of cataracts I started to do some research on the subject, and after getting a tip from my son and searching the Internet about natural eye drops which are supposed to work as an antiseptic and cure for cataracts and several cornea problems. I made the drops myself and now also use 1 drop in each eye 3 times a day. According to the reports after about 3 months the cataract should start to shrink.
The recipe for the drops is very simple; it's a mix of purified water and honey with a mix of 4:1 (4 parts purified water and 1 part honey).

The next appointment with the Ophthalmologist now depends on when, or if the oedema comes back.
So far it's looking positive, as it's already 14 days after I was supposed to meet with my Ophthalmologist and 6 weeks after the last injection.

I'll keep you posted on the developments.
If you have a question about my experience with Macular Oedema or Retinal Vein Occlusion, please feel free to e-mail me at sipreal@gmail.com



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